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"The Forever Fix" Explains Gene Therapy

By Saleem Rana


Monday, October 1st, 2012

Interview By Allen Cardoza

Allen Cardoza, the founder of the Answers for the Family Blog, welcomed writer Ricki Lewis to this week's L.A. Talk Radio to review her most recent book, "The Forever Fix." This is the very first book of its kind to reveal the inside story of gene treatment. The narrative non-fiction publication is a summary of how gene treatment works in real life and the scientific discipline behind it.

Ricki Lewis

Ricki grew up in New York City, earning her PhD in genetics from Indiana University in 1980 by working with mutant flies that had legs growing out of their heads. After writing several textbooks and thousands of magazine articles, she is most excited about her first narrative nonfiction book, "The Forever Fix: Gene Therapy and the Boy Who Saved It." This is the story of a reborn biotechnology that gave the gift of sight to a young boy. In a compelling, novel-like style, Ricki chronicles the ups and downs of gene therapy through the eyes of the children, parents, researchers, and the sheepdogs that have experienced it.

Ricki is a genetic counselor in Schenectady, NY and an instructor for the Genethics online masters program at the Alden March Bioethics Institute of Albany Medical College. In her spare time, she works as a volunteer for Community Hospice in Schenectady.

The Quiet Revolution in Gene Therapy

Allen began the interview by talking Ricki into sharing with the audiences the enthralling story of Corey Haas. Corey Haas, Ricki explained, had successfully undergone gene therapy when he was eight years old to heal his genetic blindness. His repaired vision marked a development in the recognition of the astounding value of gene therapy. Nine years earlier, the biotechnology had actually been sidelined when an 18-year-old perished in a very similar experiment in the very same Philadelphia hospital.

In the course of the interview, Ricki discussed genetic disease, genetic examining, and genetic counseling, in addition to gene treatments, rare illnesses, and stem cell science. She even reviewed how researchers learned from each trial to get one step closer to a more complete understanding of gene therapy. She decided to call her book the "Forever Fix," because gene therapy solved hereditary illnesses at their genetic source. After a single therapy, clients, generally children with rare genetic diseases, did not need more surgical procedures or medicine.




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